Early detection is key to defeating breast cancer. Get a mammogram and be one of the lucky ones.
Saturday, December 28, 2013
Merry Christmas 2013
This is my third Christmas after this crappy disease and I am grateful for all the wonderful years I have been given and all the things I have been able to share -- Sarah's graduation, her engagement, our 25th anniversary, Hawaii.
So very much to look forward to.
Dr. Knaysi
On Dec. 24 I got a notice in the mail that Dr. Knaysi was cutting back on his practice ... reducing the number of hours in the office, etc., etc. Can't say I blame the man -- he is over 70 years old and it is time to take care of himself.
There was also a card enclosed on which we could write our recollections of how he has helped us. How do you describe in a couple of sentences how a man's skill has saved your life? And how he knew before you did that not being able to see the scars of the surgery everyday would help you overcome the horrors of this most awful of diseases?
Yes, I will be happy to write a little note to Dr. Knaysi to thank him for his skill and for not listening to me when I said I didn't care what it looked like ... just get it all out. The truth of the matter is ... it does matter what it looks like after surgery.
I will be forever grateful for Dr. Knaysi's skill and caring. I will never forget him.
There was also a card enclosed on which we could write our recollections of how he has helped us. How do you describe in a couple of sentences how a man's skill has saved your life? And how he knew before you did that not being able to see the scars of the surgery everyday would help you overcome the horrors of this most awful of diseases?
Yes, I will be happy to write a little note to Dr. Knaysi to thank him for his skill and for not listening to me when I said I didn't care what it looked like ... just get it all out. The truth of the matter is ... it does matter what it looks like after surgery.
I will be forever grateful for Dr. Knaysi's skill and caring. I will never forget him.
Thursday, December 12, 2013
Arimidex and Exercise
I didn't need a study to tell me that my achy joints and muscles would actually feel better if I just exercised. I figured that out myself during chemo and when I started taking Arimidex in October of 2011.
But it's good to have a study to confirm what I already know -- if you just exercise and keep moving, you tolerate chemo better, and now Arimidex: http://houston.cbslocal.com/2013/12/12/study-exercise-helps-women-tolerate-breast-cancer-drugs/
This is why I sometimes exercise like a demon when it would be so much easier to sit in a chair and put my feet up, and say, "poor me ... I'm too tired to do anything." My fear has always been if I did that, I would be too stiff to ever move again.
I have two more years of Arimidex and since it reduces my chance of recurrence by 50% ... I will gladly take it inspite of the side effects. I cannot believe that 15% of women in the US need to be taking Arimidex but less than 5% actually do. As long as you can live with the side effects, why would you choose not to be cancerfree?
I thank God for the opportunity to live another 5, 10, 20 or 30 years, and to treasure every moment I have left.
Tuesday, October 15, 2013
October in Paradise
Twenty-five years ago when we got married we were in graduate school and didn't have the money or the time for a honeymoon. We have taken many wonderful trips since then, but for our 25th we decided that we should celebrate all the years that God has given us, and take a trip to an island most people go to for their honeymoon. And so we picked Oahu, Hawaii.
This is October and even in paradise the pink ribbon is everywhere. On our way to Waimanalo I spotted this ribbon on a tree outside a medical center -- the pink vivid against the lush green ... and I can smile because I am alive and starting a weeklong vacation with the best husband anyone could wish for.
This is October and even in paradise the pink ribbon is everywhere. On our way to Waimanalo I spotted this ribbon on a tree outside a medical center -- the pink vivid against the lush green ... and I can smile because I am alive and starting a weeklong vacation with the best husband anyone could wish for.
And I wonder how many women are here celebrating their victory over this dreadful disease. As I walk around enjoying the sights and sounds of Oahu, I notice a pink bracelet wrapped around a wrist, a pink t-shirt worn proudly, and I know that we have all been marked by breast cancer.
We had a great time in paradise! Dr. Schaffer told me not too long ago "to live" and I have done that.
Friday, August 30, 2013
Brittle Bones and Estrogen Inhibitors
It almost seems that you can't win for trying, but what choice does a woman have? I think most of us on estrogen inhibitors know that our bone density will suffer because of it, the studies referenced in the article before, just confirm that and tell us just how badly.
http://health.yahoo.net/articles/breast-cancer/breast-cancer-survivors-battling-brittle-bones
And yes I exercise on the elliptical almost everyday. I make a point of doing at least 30 kilometres a week, but now I am going to diligently add weights to my exercise routine. I had been good about it but that fell by the ways sides once I started exceeding my elliptical goals. Now the weights are back in on a regular basis starting today.
We have no choice but to live with this for the next how many years we have left of taking this medication, but we can improve our odds. This is just one more battle we have to undertake in order to win the war.
http://health.yahoo.net/articles/breast-cancer/breast-cancer-survivors-battling-brittle-bones
And yes I exercise on the elliptical almost everyday. I make a point of doing at least 30 kilometres a week, but now I am going to diligently add weights to my exercise routine. I had been good about it but that fell by the ways sides once I started exceeding my elliptical goals. Now the weights are back in on a regular basis starting today.
We have no choice but to live with this for the next how many years we have left of taking this medication, but we can improve our odds. This is just one more battle we have to undertake in order to win the war.
Tuesday, August 20, 2013
Oncologist's Visit
Two weeks ago I had my six-month oncologist visit and everything went well. The doctor was happy with me. I've been doing 30K on the elliptical every week and I haven't had any joint or muscle pain. I'm still eating wheat free. I am trying my darndest to stop this disease from coming back.
The next visit will be in February, after the mammogram, ultrasound and MRI, and then I will have another year of not worrying every second of every day.
Wednesday, May 15, 2013
Going Wheatfree and Joint Pain
Anyone who knows me knows that I am willing to try anything (well almost anything) so that I don't have to put another pill into my body. When I started getting awful joint pain four months ago, I knew that I couldn't live with it. I couldn't exercise and I couldn't walk properly, and I was not willing to live like that for another four years.
I started doing some research and searching the discussion boards and found women with the same issue who had given up eating wheat which in turn eliminated their joint pain. I read Wheat Belly and decided that I could give it a shot ... that my body was not going to be deprived of essential nutrients.
On February 5 I started eating wheat free. I've had a couple instances when I ate a cupcake or a bite of pizza early on, but now I am mixing my own flours and am baking entirely wheat free, and my body has adjusted to this new way of eating. My joint and muscle pain has disappeared. I am exercising and I feel human again.
I have lost about seven pounds since Feb. 5, and I am all right with that since the whole point of this new eating regiment was to get rid of the joint pain. I am happy about the weight loss but that was not my main point.
It hasn't been as hard as I thought it was going to be. You have to read labels and you have to be really, really good about scrutinizing everything, and when in doubt -- don't! Every now and then the craving for a sandwich hits me. I have been looking for bread substitutes everywhere but it wasn't until this weekend that I found a recipe for a gluten free white bread, that might actually do the trick. It's a little chewier than regular white bread but I'm ok with that, and it looks very much like white bread. This might be sufficient for the moment.
Life goes on ... just a different way.
I started doing some research and searching the discussion boards and found women with the same issue who had given up eating wheat which in turn eliminated their joint pain. I read Wheat Belly and decided that I could give it a shot ... that my body was not going to be deprived of essential nutrients.
On February 5 I started eating wheat free. I've had a couple instances when I ate a cupcake or a bite of pizza early on, but now I am mixing my own flours and am baking entirely wheat free, and my body has adjusted to this new way of eating. My joint and muscle pain has disappeared. I am exercising and I feel human again.
I have lost about seven pounds since Feb. 5, and I am all right with that since the whole point of this new eating regiment was to get rid of the joint pain. I am happy about the weight loss but that was not my main point.
It hasn't been as hard as I thought it was going to be. You have to read labels and you have to be really, really good about scrutinizing everything, and when in doubt -- don't! Every now and then the craving for a sandwich hits me. I have been looking for bread substitutes everywhere but it wasn't until this weekend that I found a recipe for a gluten free white bread, that might actually do the trick. It's a little chewier than regular white bread but I'm ok with that, and it looks very much like white bread. This might be sufficient for the moment.
Life goes on ... just a different way.
EEOC Facts About Cancer in the Workplace
Questions and Answers About Cancer in the Workplace and the Americans with Disabilities Act (ADA)
Notice Concerning The Americans With Disabilities Act Amendments Act Of 2008
The Americans with Disabilities Act (ADA) Amendments Act of 2008 was signed into law on September 25, 2008 and becomes effective January 1, 2009. Because this law makes several significant changes, including changes to the definition of the term "disability," the EEOC will be evaluating the impact of these changes on this document and other publications. See the list of specific changes to the ADA made by the ADA Amendments Act.
INTRODUCTION
The Americans with Disabilities Act (ADA) is a federal law that prohibits discrimination against individuals with disabilities. Title I of the ADA covers employment by private employers with 15 or more employees as well as state and local government employers. The Rehabilitation Act provides the same protections related to federal employment. In addition, most states have their own laws prohibiting employment discrimination on the basis of disability. Some of these state laws apply to smaller employers and may provide protections in addition to those available under the ADA.[1]The U.S. Equal Employment Opportunity Commission (EEOC) enforces the employment provisions of the ADA.[2] This is the fourth in a series of question-and-answer documents addressing particular disabilities in the workplace.[3] It explains how the ADA might apply to job applicants and employees who have or had cancer. In particular, this guide explains:
- when cancer is a disability under the ADA;
- when an employer may ask an applicant or employee questions about his or her cancer and how it should treat voluntary disclosures;
- what types of reasonable accommodations employees with cancer may need; and,
- how employers can ensure that they do not discriminate against applicants and employees with cancer.
GENERAL INFORMATION ABOUT CANCER
Approximately 40 percent of the more than one million Americans diagnosed with some form of cancer each year are working-age adults, and nearly 10 million Americans have a history of cancer.[4]Despite significant gains in cancer survival rates and the passage of the ADA, people with cancer still experience barriers to equal job opportunities. One reason individuals with cancer face discrimination at work is their supervisors' and co-workers' misperceptions about their ability to work during and after cancer treatment. Even when the prognosis is excellent, some employers expect that a person diagnosed with cancer will have long absences from work or not be able to focus on duties. Today, however, unlike one hundred years ago when cancer was a literal "death sentence," most working-age cancer survivors return to work and have relatively the same productivity rates as other workers.[5]
1. What is cancer?
Cancer is a group of related diseases characterized by the out-of-control growth of abnormal cells caused both by external and internal factors such as chemicals, radiation, immune conditions, and inherited mutations. Different cancers have different risk factors. Many people with one or more risk factors never develop cancer, while others with this disease have no known risk factors. Different types of cancer vary in their rate of growth, pattern of spreading throughout the body, and response to treatment. Many types of cancer may be cured by surgery, radiation, chemotherapy, hormone therapy, and/or bone marrow transplant.[6]
Cancer's effect on an individual depends on many factors, including the primary site of the cancer, stage of the disease, age and health of the individual, and type of treatment(s). The most common symptoms and side effects of cancer and/or its treatment are pain, fatigue, problems related to nutrition and weight management, nausea, vomiting, hair loss, low blood counts, memory and concentration loss, depression, and respiratory problems.[7]
2. When is cancer a disability under the ADA?
Cancer is a disability under the ADA when it or its side effects substantially limit(s) one or more of a person's major life activities.
Example: Following a lumpectomy and radiation for aggressive breast cancer, a computer sales representative experienced extreme nausea and constant fatigue for six months. She continued to work during her treatment, although she frequently had to come in later in the morning, work later in the evening to make up the time, and take breaks when she experienced nausea and vomiting. She was too exhausted when she came home to cook, shop, or do household chores and had to rely almost exclusively on her husband and children to do these tasks. This individual's cancer is a disability because it substantially limits her ability to care for herself.
Example: A telephone repairman with an advanced form of testicular cancer has chemotherapy and surgery that render him sterile. He is an individual with a disability under the ADA because he is substantially limited in the major life activity of reproduction.
Even when the cancer itself does not substantially limit any major life activity (such as when it is diagnosed and treated early), it can lead to the occurrence of other impairments that may be disabilities. For example, sometimes depression may develop as a result of the cancer, the treatment for it, or both. Where the condition lasts long enough (i.e., for more than several months) and substantially limits a major life activity, such as interacting with others, sleeping, or eating, it is a disability within the meaning of the ADA.Cancer also may be a disability because it was substantially limiting some time in the past.
Example: A company president was hospitalized for 30 days immediately following his diagnosis of blood cancer. Because his treatment, which included chemotherapy and a bone marrow transplant, weakened his immune system he was unable to care for himself for six months and had to avoid interactions with almost everyone except his doctors, nurses, and immediate family members. This individual has a record of a disability.
Finally, cancer is a disability when it does not significantly affect a person's major life activities, but the employer treats the individual as if it does.
Example: An individual with a facial scar from surgery to treat skin cancer applies to be an airline customer service representative. The interviewer refuses to consider him for the position because she fears that his scar will make customers uncomfortable. In basing her decision not to hire on the presumed negative reactions of customers, the interviewer is regarding the applicant as substantially limited in working in any job that involves interacting with the public.
Example: After making a job offer, an employer learns that an applicant's genetic profile reveals an increased susceptibility to colon cancer. Although the applicant does not currently have and may never in fact develop colon cancer, the employer withdraws the job offer solely based on concerns about productivity, insurance costs, and attendance. The employer is treating the applicant as if he has a disability.
Under the ADA, the determination of whether an individual currently has, has a record of, or is regarded as having a disability is made on a case-by-case basis.OBTAINING, USING, AND DISCLOSING MEDICAL INFORMATION
Title I of the ADA limits an employer's ability to ask questions related to disability or conduct medical examinations at three stages: pre offer, post offer, and during employment.Job Applicants
Before an Offer of Employment is Made
3. May an employer ask a job applicant whether he has or had cancer or about treatment related to cancer prior to making a job offer?No. An employer may not ask questions about an applicant's medical condition or require an applicant to have a medical examination before it makes a conditional job offer. This means that an employer cannot ask an applicant questions such as:
- whether she has or ever had cancer;
- whether she is undergoing chemotherapy or radiation or taking medication used to treat or control cancer (e.g., Tamoxifen) or ever has done so in the past; or,
- whether she ever has taken leave for surgery or medical treatment, or how much sick leave she has taken in the past year.
- whether he can lift up to 50 pounds;
- whether he can travel out of town; or,
- whether he can work rotating shifts.
4. May an employer ask any follow-up questions if an applicant voluntarily reveals that he has or had cancer?
An employer may not ask an applicant who has voluntarily disclosed that he has cancer any questions about the cancer, its treatment, or its prognosis. However, if an applicant voluntarily discloses that he has cancer and the employer reasonably believes that an accommodation will be required to perform the job, an employer may ask whether the applicant will need an accommodation and, if so, what type.
Example: An individual applies for a retail clerk position at a 24-hour convenience store. The job posting indicated that the store was seeking to hire a clerk to work from 2:00 p.m. to 10:00 p.m. During the interview, the applicant mentions that the hours are ideal for him because he will not have to make any adjustments to his scheduled radiation treatments for prostate cancer, which occur in the early morning and are expected to continue for the next five weeks. He also mentions that he has not had any side effects during his first three weeks of treatment. Because the applicant is not requesting a reasonable accommodation, and there is no reason to believe he will require one, the interviewer cannot ask him any questions about the need for reasonable accommodation.
Example: An applicant for a bank teller position arrives at the job interview wearing a scarf on her head and explains that it is because she is currently undergoing chemotherapy and has lost her hair. The bank has a policy of generally prohibiting tellers from wearing hats, caps, or headscarves while at work. The interviewer may explain the workplace policy and ask the applicant whether she may need a reasonable accommodation (i.e., modification of the policy until her hair grows back).
The employer also must keep any information an applicant discloses about his medical information confidential. (See "Keeping Medical Information Confidential" on p. 8.)After an Offer of Employment is Made
Once an employer has made a job offer, it may ask questions about an applicant's health and may require a medical examination as long as it treats all applicants for the same type of position in the same manner. A job offer is not considered "real," however, until the employer has obtained and evaluated all readily available non-medical information.5. What should an employer do when it learns that an applicant has or had cancer after she has been offered a job?
The fact that an applicant has or had cancer may not be used to withdraw a job offer if the applicant is able to perform the fundamental duties ("essential functions") of a job, with or without reasonable accommodation, and without posing a direct threat to safety. (A "direct threat" is a significant risk of substantial harm to the individual or others in the workplace that cannot be reduced or eliminated through reasonable accommodation. (See Questions 6, 7, and 18 below.) The employer, therefore, should evaluate the applicant's present ability to perform the job rather than make unfounded assumptions. To do this, an employer also may ask the applicant medically related follow-up questions about his cancer, such as whether he is undergoing treatment or experiencing any side effects that could interfere with the ability to do the job or that might require a reasonable accommodation.
Example: An applicant is asked to complete a medical history questionnaire and have a medical examination after receiving an offer of a security guard position. In the section of the questionnaire asking about various current and/or past medical conditions, the applicant indicates that she was diagnosed with very early-stage colon cancer six years ago. When the doctor conducting the medical exam asks medically related follow-up questions about the possibility of recurrence, the applicant explains that she did not require any further treatment after the malignant polyp was removed and that her annual colonoscopies for the past five years have shown no evidence of disease. Because the applicant is able to perform the duties of a security officer without posing a direct threat, the employer may not withdraw the job offer.
Employees
The ADA strictly limits the circumstances under which an employer may ask questions about an employee's medical condition or require the employee to have a medical examination.6. When may an employer ask an employee if cancer, or some other medical condition, may be affecting her ability to do her job?
An employer may ask questions or require an employee to have a medical examination only when it has a legitimate reason to believe that cancer, or some other medical condition, may be affecting the employee's ability to do her job, or to do so safely. Sometimes an employer will be able to ask for medical information because it knows that the person has cancer and reasonably believes that the cancer itself, its treatment, and/or side effects are causing the employee's performance problems. At other times, an employer may ask for medical information when it has observed symptoms, such as fatigue or difficulties with memory or concentration, or has received reliable information from someone else (e.g., a family member or co-worker), indicating that the employee may have a medical condition that is causing performance problems.
Example: An attorney complains to a law firm partner that, several times a day for the past month, the receptionist has missed numerous phone calls and has not been at her desk to greet clients. The attorney explains that she has been reluctant to say anything because she knows that around the same time the performance problems began, the receptionist started undergoing radiation for some type of cancer. The partner may ask the receptionist questions about whether her cancer treatments are causing the performance problems and, if so, how long the treatments are expected to continue and whether she needs a reasonable accommodation.
Poor job performance, however, often is unrelated to a medical condition and should be handled in accordance with an employer's existing employment policies.
Example: A normally reliable computer programmer, who had surgery several years ago to treat early-stage thyroid cancer, lately has been calling in sick on Monday mornings. This pattern started shortly after the programmer began working weekends as a bartender. The supervisor can counsel the programmer about his attendance problems but may not ask him questions about his medical condition (including whether his cancer has returned) unless there is evidence that his absences stem from a medical condition.
7. May an employer require an employee on leave because of cancer to provide documentation or have a medical exam before allowing her to return to work?Yes. If the employer has a reasonable belief that the employee may be unable to perform her job or may pose a direct threat to herself or others, the employer may ask for medical information. However, the employer may obtain only the information needed to make an assessment of the employee's present ability to perform her job and to do so safely.
Example: A newspaper reporter, who has been on leave for eight months receiving experimental treatment for non-aggressive lung cancer, notifies her employer that she will be able to return to work in two weeks but will need to continue her treatment for four more months. Because the reporter's job frequently requires her to travel nationally and internationally on short notice, the employer may ask her to provide a doctor's note or other documentation indicating whether she can travel during the next four months and, if so, how long she can be away.
8. Are there any other instances when an employer may ask an employee about cancer?An employer may ask an employee with cancer:
- for information, including reasonable documentation, explaining the need for a reasonable accommodation requested because of cancer;
- for medical information that is part of a voluntary wellness program;[8]
- to justify the use of sick leave by providing a doctor's note or other explanation, as long as all employees who use sick leave are required to do the same and the information requested does not exceed what is necessary to verify that sick leave is being used appropriately; and,
- for periodic updates on his condition if the employee has not provided an exact or fairly specific date of return, or where the employee requests leave in excess of that which the employer already has granted.[9]
Keeping Medical Information Confidential
With limited exceptions, an employer must keep confidential any medical information it learns about an applicant or employee. Under the following circumstances, however, an employer may disclose that an employee has cancer:- to supervisors and managers, if necessary to provide a reasonable accommodation or meet an employee's work restrictions;
- to first aid and safety personnel if an employee would need emergency treatment or require some other assistance at work;
- to individuals investigating compliance with the ADA and similar state and local laws; and,
- as needed for workers' compensation or insurance purposes (for example, to process a claim).
No. Telling co-workers that an employee is receiving a reasonable accommodation amounts to a disclosure of the employee's disability. Rather than disclosing that the employee is receiving a reasonable accommodation, the employer should focus on the importance of maintaining the privacy of all employees and emphasize that its policy is to refrain from discussing the work situation of any employee with co-workers. Employers may be able to avoid many of these kinds of questions by training all employees on the requirements of EEO laws, including the ADA.
10. If an employee has lost a lot of weight or appears fatigued, may an employer explain to co-workers that the employee has cancer?
No. Although the employee's co-workers and others in the workplace may be concerned about the employee's health, an employer may not reveal that the employee has cancer.
Example: A hair stylist, who has been unable to eat regularly because he is undergoing chemotherapy for melanoma, has lost 30 pounds. His co-workers and other clients are gossiping about whether he is HIV-positive or has AIDS. The salon owner should act to discourage the rumors and gossip but may not disclose that the employee has cancer.
An employer also may not explain to other employees why an employee with cancer has been absent from work. ACCOMMODATING EMPLOYEES WITH CANCER
The ADA requires employers to provide adjustments or modifications to enable people with disabilities to enjoy equal employment opportunities unless doing so would be an undue hardship (i.e., a significant difficulty or expense). Accommodations vary depending on the needs of an individual with a disability. Not all employees with cancer will need an accommodation or require the same accommodations, and most of the accommodations a person with cancer might need will involve little or no cost. An employer must provide a reasonable accommodation that is needed because of the limitations caused by the cancer itself, the side effects of medication or treatment for the cancer, or both. For example, an employer may have to accommodate an employee who is unable to work while she is undergoing chemotherapy or who has depression as a result of cancer, the treatment for it, or both. An employer, however, has no obligation to monitor an employee's medical treatment or ensure that he is receiving appropriate treatment.11. What types of reasonable accommodations may employees with cancer need?
Some employees with cancer may need one or more of the following accommodations:
- leave for doctors' appointments and/or to seek or recuperate from treatment[11]
- periodic breaks or a private area to rest or to take medication
- adjustments to a work schedule
Example: An engineer working independently on a long-term project has to undergo radiation for cancer every weekday morning for the next eight weeks. The employer should consider whether it could provide a flexible schedule (e.g., allow him to come in later or work part-time) to accommodate his treatment.
- permission to work at home[12]
- modification of office temperature
- permission to use work telephone to call doctors
- reallocation or redistribution of marginal tasks to another employee
Example: A janitor, who had a leg amputated to cure bone cancer, can perform all of his essential job functions without accommodation but has difficulty climbing into the attic to occasionally change the building's air filter. The employer likely can reallocate this marginal function to one of the other janitors.
- reassignment to another job
Example: As a result of lymphedema[13] from her mastectomy, a truck driver for a courier service no longer can lift anything heavier than 10 pounds and, therefore, informs her employer that she is unable to do her current job, which requires her to load and unload packages weighing up to 70 pounds. The employer must consider whether a vacant position exists for which the driver is qualified and to which she can be reassigned as a reasonable accommodation, absent undue hardship. The vacant position must be equivalent in terms of pay and status to the original job, or as close as possible if no equivalent position exists. The position need not be a promotion, although the employee should be able to compete for any promotion for which she is eligible. The employer also does not have to "bump" another employee to create a vacancy.
12. How does an employee with cancer request a reasonable accommodation?
There are no "magic words" that a person has to use when requesting a reasonable accommodation. A person simply has to tell the employer that she needs an adjustment or change at work because of her cancer.
Example: A nurse tells her supervisor that she is having trouble working 12 hours a day because of medical treatments she is undergoing for breast cancer. This is a request for reasonable accommodation.
A request for reasonable accommodation also can come from a family member, friend, health professional, or other representative on behalf of a person with cancer. 13. May an employer request documentation when an employee who has cancer needs a reasonable accommodation?
Yes. An employer may request reasonable documentation where a disability or the need for reasonable accommodation is not obvious. An employer, however, is entitled only to documentation sufficient to establish that the employee's cancer is a disability and that explains why an accommodation is needed. A request for an employee's entire medical record, for example, would be inappropriate, as it likely would include information about conditions other than the employee's cancer.
Example: An employee asks for leave to receive treatment for colon cancer. His oncologist provides a letter indicating that treatment of the condition will require surgery to remove a portion of the large intestines, along with chemotherapy and radiation. The employee will be totally unable to work for the next six months and, even after the cancer has been treated and the employee can return to work, he will have to use a colostomy bag for the rest of his life for waste elimination. The oncologist's letter concludes that, although he hopes the employee will be able to return to a fairly normal life-style following his treatments, he will need to remain under close medical supervision for five years to detect and prevent any recurrence. The doctor's letter is sufficient to demonstrate that the employee has a disability and needs the reasonable accommodation of leave. If, after returning to work, the employee makes a subsequent accommodation request related to his colon cancer and the need for accommodation is not obvious, the employer may ask for documentation (e.g., a doctor's note) demonstrating why the accommodation is needed but may not ask for documentation establishing that the employee's colon cancer is a disability.
14. Does an employer have to grant every request for a reasonable accommodation?No. An employer does not have to provide an accommodation that would result in "undue hardship." Undue hardship means that providing the reasonable accommodation would result in significant difficulty or expense. However, if a requested accommodation is too difficult or expensive, an employer should determine whether there is another easier or less costly accommodation that would meet the employee's needs.
An employer also is not required to provide the reasonable accommodation that an individual wants but, rather, may choose among reasonable accommodations as long as the chosen accommodation is effective. If more than one accommodation is effective, the employee's preference should be given primary consideration.
15. May an employer be required to provide more than one accommodation for the same employee with cancer?
Yes. The duty to provide a reasonable accommodation is an ongoing one. Although some employees with cancer may require only one reasonable accommodation, others may need more than one. For example, an employee with cancer may require leave for surgery and subsequent recovery but may be able to return to work on a part-time or modified schedule while receiving chemotherapy. An employer must consider each request for a reasonable accommodation and determine whether it would be effective and whether providing it would pose an undue hardship.
16. Is an employer required to remove one or more of a job's essential functions to accommodate an employee with cancer?
No. An employer never has to reallocate essential functions as a reasonable accommodation but can do so if it wishes. In fact, it may be mutually beneficial to the employer and employee to remove an essential function that the employee is unable to do, at least on a temporary basis, because of limitations caused by the cancer, its treatment, and/or side effects.
Example: A doctor becomes too fatigued from cancer treatments to perform surgery, but she still is able to conduct surgical consults and perform her research and teaching duties. Her employer may temporarily remove her from the surgery schedule, rather than placing her on leave, while allowing her to continue performing her other duties.
17. May an employer automatically deny a request for leave from someone with cancer because the employee cannot specify an exact date of return?No. Granting leave to an employee who is unable to provide a fixed date of return may be a reasonable accommodation. Although many types of cancer can be successfully treated -- and often cured -- the treatment and severity of side effects often are unpredictable and do not permit exact timetables. An employee requesting leave because of cancer, therefore, may be able to provide only an approximate date of return (e.g., "in six to eight weeks," "in about three months"). In such situations, or in situations in which a return date must be postponed because of unforeseen medical developments, employees should stay in regular communication with their employers to inform them of their progress and discuss the need for continued leave beyond what originally was granted. The employer also has the right to require that the employee provide periodic updates on his condition and possible date of return. After receiving these updates, the employer may reevaluate whether continued leave constitutes an undue hardship.
CONCERNS ABOUT SAFETY
When it comes to safety, an employer should be careful not to act on the basis of myths, fears, generalizations, or stereotypes about cancer. Instead, the employer should evaluate each individual on his knowledge, skills, experience, and the extent to which cancer affects his ability to work in a particular job.18. When may an employer prohibit a person who has cancer from performing a job because of safety concerns?
An employer only may exclude an individual with cancer from a job for safety reasons when the individual poses a direct threat. A "direct threat" is a significant risk of substantial harm to the individual or others that cannot be eliminated or reduced through reasonable accommodation. This determination must be based on objective, factual evidence, including the best recent medical evidence and advances to treat and cure cancer.
In making a direct threat assessment, the employer must evaluate the individual's present ability to safely perform the job. The employer also must consider:
(1) the duration of the risk;
(2) the nature and severity of the potential harm;
(3) the likelihood that the potential harm will occur; and,
(4) the imminence of the potential harm.
The harm must be serious and likely to occur, not remote and speculative. Finally, the employer must determine whether any reasonable accommodation would reduce or eliminate the risk.(2) the nature and severity of the potential harm;
(3) the likelihood that the potential harm will occur; and,
(4) the imminence of the potential harm.
Example: A school district may not demote a high school principal, who has been successfully treated for non-Hodgkin's lymphoma, because it fears that the stress of the job may trigger a relapse.
HARASSMENT
The ADA also prohibits harassment based on disability just as other federal laws prohibit harassment based on race, sex, color, national origin, religion, or age. Harassment is actionable under the ADA when a person is subjected to offensive conduct that is sufficiently severe or pervasive to create a hostile or abusive work environment. Employees who believe that they have been harassed because of cancer may file a charge with the EEOC as described below.LEGAL ENFORCEMENT
Any person who believes that his or her employment rights have been violated on the basis of disability and wants to make a claim against an employer must file a charge of discrimination with the EEOC. A third party also may file a charge on behalf of another person claiming to be aggrieved. For example, a family member or other representative can file a charge on behalf of someone with cancer who may be unable to file a charge. The charge must be filed by mail or in person with the local EEOC office within 180 days from the date of the alleged violation. The 180-day filing deadline is extended to 300 days if a state or local anti-discrimination law also covers the charge.The EEOC will send the parties a copy of the charge and may ask for responses and supporting information. Before a formal investigation, the EEOC may select the charge for EEOC's mediation program. Both parties must agree to mediation, which may prevent a time-consuming investigation of the charge. Participation in mediation is free, voluntary, and confidential.
If mediation is unsuccessful, the EEOC investigates the charge to determine if there is "reasonable cause" to believe discrimination has occurred. If reasonable cause is found, the EEOC will then try to resolve the charge with the employer. In some cases, where the charge cannot be resolved, the EEOC will file a court action. If the EEOC finds no discrimination, or if an attempt to resolve the charge fails and the EEOC decides not to file suit, it will issue a notice of a "right to sue," which gives the charging party 90 days to file a court action. A charging party also can request a notice of a "right to sue" from the EEOC 180 days after the charge first was filed with the EEOC and may then bring suit within 90 days after receiving the notice. For a detailed description of the process, visit our web site at http://www.eeoc.gov/employees/charge.cfm. For issues relating to federal employment, please refer to our web site at http://www.eeoc.gov/facts/fs-fed.html.
Retaliation
The ADA prohibits retaliation by an employer against someone who opposes discriminatory employment practices, files a charge of employment discrimination, or testifies or participates in any way in an investigation, proceeding, or litigation. Persons who believe that they have been retaliated against may file a charge of retaliation with the EEOC as described above.
[1] For example, disability laws in California, Pennsylvania, New Jersey, and New York apply to employers with fewer than 15 employees. The California disabilities statute also specifically covers individuals who currently have cancer or have had cancer in the past.
[2] The EEOC also coordinates compliance with Executive Order 13145, which prohibits discrimination in federal employment based on protected genetic information, such as information about the occurrence of a disease (such as cancer) or a medical condition in an applicant's or employee's family members. See EEOC Policy Guidance on Executive Order 13145: To Prohibit Discrimination in Federal Employment Based on Genetic Information (July 26, 2000) at www.eeoc.gov/policy/docs/guidance-genetic.html.
[3] See Questions and Answers About Diabetes in the Workplace and the Americans with Disabilities Act (ADA) at www.eeoc.gov/facts/diabetes.html, Questions and Answers About Epilepsy in the Workplace and the Americans with Disabilities Act (ADA) at www.eeoc.gov/facts/epilepsy.html, and Questions & Answers About Persons with Intellectual Disabilities in the Workplace and the Americans with Disabilities Act, at www.eeoc.gov/facts/intellectual_disabilities.html.
[4] American Cancer Society (ACS), Cancer Facts & Figures 2005.
[5] See George M. Wheatley et al., The Employment of Persons with a History of Treatment for Cancer, 33 Cancer 441, 445 (1974)(concluding that "the selective hiring of persons who have been treated for cancer, in positions for which they are qualified, is a sound industrial practice").
[6] ACS, Cancer Reference Information at http://www.cancer.org.
[7] Id.
[8] The ADA allows employers to conduct voluntary medical examinations and activities, including obtaining voluntary medical histories, which are part of an employee wellness program (such as a smoking cessation or cancer detection screening program), as long as any medical records (including, for example, the results of a mammogram or other diagnostic tests) acquired as part of the program are kept confidential.
[9] See Enforcement Guidance: Disability-Related Inquiries and Medical Examinations of Employees Under the Americans with Disabilities Act (ADA) at Question 16 (July 26, 2000) at www.eeoc.gov/policy/docs/guidance-inquiries.html.
[10] Id.
[11] An employee who needs continuing or intermittent leave, or a part-time or modified schedule, as a reasonable accommodation also may be entitled to leave under the Family and Medical Leave Act (FMLA). For a discussion of how employers should treat situations in which an employee may be covered both by the FMLA and the ADA, see Questions 21 and 23 in the EEOC Enforcement Guidance on Reasonable Accommodation and Undue Hardship Under the Americans with Disabilities Act (rev. Oct. 17, 2002) at
www.eeoc.gov/policy/docs/accommodation.html.
www.eeoc.gov/policy/docs/accommodation.html.
[12] See EEOC fact sheet on Telework as a Reasonable Accommodation at www.eeoc.gov/facts/telework.html.
[13] Treatment for cancer may have some permanent effects. In breast cancer, for example, removal of lymph nodes makes women subject to lymphedema, a painful swelling in the arms and hands.
This page was last modified on January 19, 2011.

Wednesday, April 3, 2013
Crippling Leg Pain & Arimidex
Lately the bogeyman for all my pains seems to be Arimidex. For the past eight weeks I've had such horrible, horrible muscle pain in my right leg that I've only managed to hobble. It travelled up from my calf, went to the inside of my knee and seemed to want to crawl up my thigh when it stopped, and seems to have haltered for the moment.
Dr. Schaeffer sent me for a Venus Doppler so she could rule out a deep vein thrombosis. Thank goodness it wasn't a blood clot! I apparently have a Baker's Cyst: http://www.mayoclinic.com/health/bakers-cyst/DS00448 It's located at the back of my knee slightly to the left. The doctor is attributing my leg pain to this cyst, but I know it is not due to that.
Even though I did not know what the pain behind my knee was called, I've known of its presence for a long time. This is the pain that tells me I have walked enough after I've spent four hours on my feet walking around Golden Gate Park, or I've spent too long on the elliptical. This is not the cause of the crippling muscle pain that makes me want to weep.
That searing pain has disappeared and there is now only a dull ache around my knee cap. It's the normal joint pain that I have often associated with arthritis. Yes, I am blaming Arimidex for the intensity in joint pain and for the muscle pain in so many parts of my body.
I gave up wheat on February 5 and I will keep this up for six months. If I see an improvement in my joint and muscle pain, I will definitely keep to this regime. And if nothing happens, it will be a lesson learned and I will move on to something else. I have to keep finding ways to live in comfort in what is now my new reality.
Dr. Schaeffer sent me for a Venus Doppler so she could rule out a deep vein thrombosis. Thank goodness it wasn't a blood clot! I apparently have a Baker's Cyst: http://www.mayoclinic.com/health/bakers-cyst/DS00448 It's located at the back of my knee slightly to the left. The doctor is attributing my leg pain to this cyst, but I know it is not due to that.
Even though I did not know what the pain behind my knee was called, I've known of its presence for a long time. This is the pain that tells me I have walked enough after I've spent four hours on my feet walking around Golden Gate Park, or I've spent too long on the elliptical. This is not the cause of the crippling muscle pain that makes me want to weep.
That searing pain has disappeared and there is now only a dull ache around my knee cap. It's the normal joint pain that I have often associated with arthritis. Yes, I am blaming Arimidex for the intensity in joint pain and for the muscle pain in so many parts of my body.
I gave up wheat on February 5 and I will keep this up for six months. If I see an improvement in my joint and muscle pain, I will definitely keep to this regime. And if nothing happens, it will be a lesson learned and I will move on to something else. I have to keep finding ways to live in comfort in what is now my new reality.
Sunday, February 10, 2013
Remembering My Cousin Bert
If you've ever had cancer, it is inevitable that you will think of death and your own mortality. Death has been on my mind for the last two years ... not on the forefront, but definitely somewhere in the shadows.
In all those moments, I never thought that we would lose our cousin Bert to a heart attack. Bert with the big smile and the big heart couldn't possibly be dead at the age of 45. But she was, and the world got a little dimmer.
As I was reeling from the news, I remembered the teenager all those years ago who spent almost every weekend with us at the house in Keramat. Bert would meet me at the Star office in PJ, and together we would head home.
There lots of evenings spent grilling satay on Mum's makeshift charcoal grill; making little pizzas; going to movies; hanging out talking into the late hours of the night ... Sunday lunches at Swanson's followed by rum raisin ice cream. There was always laughter because we were at that stage in our lives -- young, unmarried, unhampered by the angst of love, all of which would come later. We were then, all young and happy, the promise of our lives stretching endlessly before us.
Bert's life would burn brilliantly for only a short time but those of us who were lucky enough to have known her, will always remember her -- the sound of her laughter, the twinkle in her eye.
Goodbye my dear cousin. You may be gone but we will never forget you.
In all those moments, I never thought that we would lose our cousin Bert to a heart attack. Bert with the big smile and the big heart couldn't possibly be dead at the age of 45. But she was, and the world got a little dimmer.
As I was reeling from the news, I remembered the teenager all those years ago who spent almost every weekend with us at the house in Keramat. Bert would meet me at the Star office in PJ, and together we would head home.
There lots of evenings spent grilling satay on Mum's makeshift charcoal grill; making little pizzas; going to movies; hanging out talking into the late hours of the night ... Sunday lunches at Swanson's followed by rum raisin ice cream. There was always laughter because we were at that stage in our lives -- young, unmarried, unhampered by the angst of love, all of which would come later. We were then, all young and happy, the promise of our lives stretching endlessly before us.
Bert's life would burn brilliantly for only a short time but those of us who were lucky enough to have known her, will always remember her -- the sound of her laughter, the twinkle in her eye.
Goodbye my dear cousin. You may be gone but we will never forget you.
Saturday, February 9, 2013
Graduation to 6 Months
I have been cancer free for two years and hence I have graduated to seeing Dr. Schaffer every six months. For the last two years I have seen her every three months. I can tell she is happy for me ... I am happy for myself!
We talk briefly about how well I did through the whole horrible process, and then I tell her about the cramping pain I've had in my calf that I've had for the last two weeks, but which has mysteriously disappeared on that day. She tells me that I must call her at once if the pain comes back and I have a brief moment of alarm as I realize what she thinks it is -- deep vein thrombosis. That had never crossed my mind.
Will I never be free of the side-effects of curing this terrible, terrible disease?
I checked the Mayo Clinic's website and one of the causes of DVT is ... drum roll ...
Cancer. Some forms of cancer increase the amount of substances in your blood that cause your blood to clot. Some forms of cancer treatment also increase the risk of blood clots.
And yes, DVT can kill:
A pulmonary embolism occurs when a blood vessel in your lung becomes blocked by a blood clot (thrombus) that travels to your lungs from another part of your body, usually your leg.
A pulmonary embolism can be fatal.
Please God let this just be a leg cramp/muscle pain caused by Arimedex.
We talk briefly about how well I did through the whole horrible process, and then I tell her about the cramping pain I've had in my calf that I've had for the last two weeks, but which has mysteriously disappeared on that day. She tells me that I must call her at once if the pain comes back and I have a brief moment of alarm as I realize what she thinks it is -- deep vein thrombosis. That had never crossed my mind.
Will I never be free of the side-effects of curing this terrible, terrible disease?
I checked the Mayo Clinic's website and one of the causes of DVT is ... drum roll ...
Cancer. Some forms of cancer increase the amount of substances in your blood that cause your blood to clot. Some forms of cancer treatment also increase the risk of blood clots.
And yes, DVT can kill:
A pulmonary embolism occurs when a blood vessel in your lung becomes blocked by a blood clot (thrombus) that travels to your lungs from another part of your body, usually your leg.
A pulmonary embolism can be fatal.
Please God let this just be a leg cramp/muscle pain caused by Arimedex.
Tuesday, February 5, 2013
The MRI
The MRI has come back with no abnormalities! I can breathe again. I have no words of wisdom ... I am just grateful at the chance to live.
Friday, January 25, 2013
Two Year Past Cancer
You tell yourself that you are not afraid and that you have faith that all will be well. But the truth of the matter is, there is always that tiny little voice at the back of your mind that worries that this is the year that the dreadful disease comes back.
Exactly two years ago today, I sat with John in a little room, and listened as Dr. Ng told me that I had Invasive Ductal Carcinoma (IDC), confirming the awful news that I already knew with absolute certainty was coming. I had known the moment Dr. de Paredes and Dr. Ng pulled out the biopsy needle. The atmosphere in that room literally changed ... and I knew. I don't know how I made it through the days after that until they gave me the diagnosis, but I did. I pulled it from somewhere in me ... don't know where the strength came from, but it did.
Today that awful day is behind me. My mammogram came back with no abnormalities. Thank you God. I promise you that I will not squander my life.
Exactly two years ago today, I sat with John in a little room, and listened as Dr. Ng told me that I had Invasive Ductal Carcinoma (IDC), confirming the awful news that I already knew with absolute certainty was coming. I had known the moment Dr. de Paredes and Dr. Ng pulled out the biopsy needle. The atmosphere in that room literally changed ... and I knew. I don't know how I made it through the days after that until they gave me the diagnosis, but I did. I pulled it from somewhere in me ... don't know where the strength came from, but it did.
Today that awful day is behind me. My mammogram came back with no abnormalities. Thank you God. I promise you that I will not squander my life.
Subscribe to:
Posts (Atom)